I’ve entitled my blog All My Christmases At Once because I noticed that my Christmas cactus, which wasn’t in flower at Christmas, has a bloom on it … in April! Is that normal? But that is not the real reason for the title of my blog.
This week I have had two very good pieces of news. As I approach the third anniversary of being diagnosed with CML I have received the results of my latest bcr/abl test, the test that measures the presence of the disease in my body to a minute degree. I am pleased to report that it has come back as a big fat row of 0000’s! This means that I have achieved a complete molecular response thanks to the increased dosage of drugs my professor has had me on since the end of January. I have copied a small piece from an article about CML so that you can see that my body has achieved something quite rare:
- Complete molecular response – when the BCR-ABL gene doesn’t show up in your blood.
- Major molecular response — most people with CML don’t have a complete molecular response. They still have a tiny amount of the BCR-ABL gene in their blood. But doctors consider this an excellent response.
“The most important milestone we’ve derived with the new treatments is the major molecular response. That’s when the leukemia is 1,000 times smaller than when we started,” says Michael J. Mauro, MD, of the Memorial Sloan-Kettering Cancer Center in New York City. “It’s a significant enough remission where the odds of the leukemia growing again or transforming into an advanced phase are dramatically lower.”
I will still have to stay on medication for at least two years but I feel I have finally reached the start of the journey back to full health, something I will never take for granted again. As you can imagine I felt pretty emotional when I heard the news and enormous relief for my family who have been through this not very pleasant journey with me. I was so pleased that we were all together as Daniel had been staying with us for a few days.
Part of the reason for Daniel’s stay was his UEFA A licence assessment on Monday and Tuesday of this week. He had completed two summer courses and had to show that he could put into practise what he had learned. I am delighted to tell you that he passed his assessment and is now one of only a couple of thousand UEFA A licence coaches in this country. I’m a very proud mummy and so happy for him that all his hard work has paid off.
What a good week it has been so far and then we have had the beautiful weather too. It gave me the chance to get into the garden for a bit of a tidy up. I mowed the lawn and did a bit of flower bed weeding but I also put Richard Jackson’s weed-killer to the test on our patio weeds. As you can see from the pictures – before, during and after – this is REALLY impressive!
I also had RJ’s Flower Power out to give the plants a bit of a feed.
That is not the only QVC product I have trialled this week. A couple of months ago my handheld vacuum cleaner gave up the ghost and it has been a nightmare clearing up after three cats with the cat fur and cat litter that involves. On Tuesday I took possession of the Dyson DC58 Animal and WOW, how appropriate is the name! It is the most effective machine I have ever used on pet hair. Both Poppy and Wilfie leave black hairs on the cream covers of the sofa in the conservatory every night. This little beast of a machine made very light work of the morning clean up…. brilliant!
Talking of brilliant I hope you will join me for 3 hours of diamonds (did you see what I did there – brilliant cut) tomorrow (Saturday) from 2pm and of course don’t miss my show with Julien Macdonald on Sunday. Another date for your diary is the Butler & Wilson TSV launching at midnight on Monday into Tuesday. Charlie is launching, I’m still not doing later shifts because of my increased medication, but I will be with Simon on Tuesday evening at 7pm.
Have a great weekend from a very happy me!